A large part of Henry's daily routine was physical therapy because movement was essential for him to build strength, Engel and Forrest had been candid about their son Henry's medical journey, In 2020, Engel opened up about how the COVID-19 pandemic had been a 'nightmare' for his son who had been cut off from the therapies that had enriched his life. He followed the uprisings in Egypt, Syria, Libya, Tunisia, Bahrain, and Yemen. In a 2019 essay about his family, the proud father gushed about an important milestone Henry had just met. [citation needed] He reported on the advances made by rebel fighters within the country as well as the mass defections from Syrian President Bashar al-Assad's government army. She visited his body in the funeral home and would sit with him daily during the weekleading up to his cremation. [34][35] In 2008, Engel interviewed U.S. Army General David Petraeus on the progress of the Iraq War and discussed the policies the general attributed to the recent successes in Iraq. I chose one of his softest, coziest ones. I would wake up feeling anxious to see him. [53], Engel was married to a fellow Stanford student; the couple divorced in 2005. How many times had I carried him in his life? Special needs children like Henry, Jack, Zach and millions of others need constant repetition and training to keep what theyd worked so hard to get. Since Henry cant play normally, school was the only place where he could interact with other children. 'The body starts to go, the hips start to go the spine hasnt been an issue, but it could be. But kids with special needs are not just missing out on new enriching experiences, theyre regressing. It means life-long, permanent, untreatable physical and intellectual impairment.". Deals and discounts in Bakeware you dont want to miss. The parents had to put his arms in braces or socks over his hands to keep him from chewing his skin until it bleeds. WebWatch On Assignment with Richard Engel Season 7. He cant feed himself efficiently. Engel and Forrest had to watch Henry constantly and stop him from putting his hands in his mouth and scratching his eyes because he could have hurt himself. He went to school for a few hours a day, with an aide. Engel received the Medill Medal for Courage in Journalism for his report "War Zone Diary". Its not uncommon for boys to succumb to this illness within the first decade, said Patterson. It resonated with me and touched on so many feelings that are constantly swirling in my head these days. 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They are now in a drawer in my dresser. NBC News chief foreign correspondent Richard Engel shared a photo of his late son, Henry, on his 7th birthday. I thought I would never be able to let his body go, but there came a time when it was clear. We sat with him in our home for hours. We move him a lot. In 2018, Engel wrote an essay for TODAY about the heartbreak and hope that come with caring for a child with Rett syndrome. Now its dangerous for the children and for the mental health of the parents. NBC News chief foreign correspondent Richard Engel announced Thursday that his 6-year-old son, Henry, had died after being diagnosed as an infant with a rare genetic neurological disorder called Rett Syndrome. "Our beloved son Henry passed away. He had the softest blue eyes, an easy smile and a contagious giggle. [1] He was assigned to that position on April 18, 2008 after serving as the network's Middle East correspondent and Beirut bureau chief. NBC News Chief Foreign Correspondent Richard Engel shared the heartbreaking news that his eldest son, 6-year-old Henry, has died. Without therapies, these kids are breaking. While describing the challenges Henry was facing, the journalist emphasized how lucky he felt to have Henry in his life. He is trying to tell me something. "Our beloved son Henry passed away. Find the best deals on HDTVs, UHD TVs, & 4KTVs from your favorite brands. Henry did equine therapy. The Engel family brought Henry to the hospital's Duncan Neurological Research Institute (Duncan NRI) in 2018 to seek additional answers. And that's one reason why kids develop such a fear of new things, the neophobia, because they don't want to have to suddenly learn a brand new environment and all these brand new faces. Due to a planned power outage on Friday, 1/14, between 8am-1pm PST, some services may be impacted. So far, the treatments for the incurable conditionare mostly limited to various forms of therapy, like physical therapy, speech therapy, and behavioral therapy. I put shorts on him, and a T-shirt out of habit. The U.S. imposes new Covid testing requirements on travelers from China as the country faces a surge in cases. The MECP2 gene dictates production of a protein that's important to brain function and the expression of other genes, according to the National Institutes of Health. Forrest works in the television business, just like her husband, but she is a producer. [52] In April 2015, NBC had to revise the kidnapping account, following further investigations by The New York Times, who had conducted several dozen interviews, suggesting that the NBC team "was almost certainly taken by a Sunni criminal element affiliated with the Free Syrian Army," rather than by a loyalist Shia group. 'For everyone following Henrys story, unfortunately hes taken a turn for the worse,' Engel tweeted along with a touching video of his younger son, Theo, cuddled in bed with his big brother. Now his mother worries he may never gain that ability. Jack with his grandfather, pre-pandemic. He cant sit in a chair, even an adapted one, for long either. 2022, Deadline Club National TV Spot News Reporting. When he tries to hurt himself, hes more than able to. [citation needed], Engel worked as the Middle East correspondent for The World, a joint production of BBC World Service, Public Radio International (PRI) and WGBH from 200103. IE 11 is not supported. When policy makers and public officials prioritize what to open, where and when, I hope they keep special needs children in mind. The TV helps, but you can only put on cartoons for so many hours a day. "Today, our flag flies over our equipment in Ukraine. 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I pictured Carolina struggling to calm Zach while also trying to work, dealing with inmates whose issues may also be pressing and stressful. "Hes here," I thought. Hes whiny. Mary Forrest, wife ofNBC News chief foreign correspondent Richard Engel, has opened up about the heartbreaking final days she spent with her six-year-old son Henry's body before he was cremated. 'Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease,' Engel added in a follow-up tweet, including a link to the donation page. in international relations. [38][39][40] Engel produced "Tip of the Spear", a series of NBC reports on the hardships and dangers faced by American soldiers, for which he won a 2008 George Foster Peabody Award. [3] He speaks and reads Arabic fluently and is fluent in Italian and Spanish. Or maybe grief makes us behave in a way that is our truest self. During this time he covered the war between Israel and Hezbollah in Lebanon. We are his legs. All of Zachs therapies were at school. In 2012, he was awarded the Alfred I. du-Pont-Columbia Award for his outstanding breaking news coverage of the uprisings. 6 Amazon travel essentials for your next getaway, starting at $12. Save up to 50% on Maternity Clothing when you shop now. Longing for him. [15][16] He filed a number of reports from Lebanon during the 2006 Lebanon War. Humans need to walk. The NBC News chief foreign correspondent said his son, who has a rare genetic disorder, has "taken a turn for the worse. Adrienne worries Jack, who was just learning to use a computer to speak, will lose the skill and with it, his ability to communicate. Mary keeps him in her lap a lot. In a personal essay, Mary Forrest, wife to NBCs Richard Engel, writes about saying goodbye to her sons physical body. 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